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Maxwell
NAME: Maxwell CURRENT AGE: 2 1/2 HOME TOWN & STATE: Denver, Colorado DIAGNOSIS DATE: Summer 2018 PARENTS: Mark and Amber SIBLINGS: Riley (twin) What it felt like when we learned our child has...
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Jack
NAME: John (Jack) Wilson Hart CURRENT AGE: 6 HOME TOWN & STATE: South Riding, VA DIAGNOSIS DATE: June 2017 PARENTS: Joe and Janet Hart SIBLINGS: Kayla, Allison, Claire, and Joshua What it felt like...
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Hannah
NAME: Hannah CURRENT AGE: 13 years HOME TOWN & COUNTY: Brighton. East Sussex. UK DIAGNOSIS DATE: August 2017 PARENTS: Trish and Terry SIBLINGS: Brother Jonathan ( 15 years) What it felt like when...
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Ellie
NAME: Eleanor (Ellie) CURRENT AGE: 14 HOME TOWN & STATE: Honesdale, PA DIAGNOSIS DATE: Ellie was diagnosed with epilepsy at 2 years old and received the SLC6A1 diagnosis at 12 through genetic...
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Elisabeth
NAME: Elisabeth (known as Beth) CURRENT AGE: 7 HOME TOWN & STATE: Hungerford, Berkshire Uk DIAGNOSIS DATE: April 2018 PARENTS: Annette and Pete SIBLINGS: Maddy (3 years) and Jago (6 years) What it...
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Danika
NAME: Danika CURRENT AGE: 3 HOME TOWN & STATE: Platteville, CO DIAGNOSIS DATE: May 2019 PARENTS: James and Lorretta SIBLINGS: Alexis, Taylor, Willow, and a puppy named Koda What it felt like when...
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Charlie
NAME: Charles Rusley Fry (goes by Charlie Fry) CURRENT AGE: 2 HOME TOWN & STATE: Kansas City, MO DIAGNOSIS DATE: August 2019 PARENTS: Nate and Kim Fry SIBLINGS: Adeline (4) What it felt like when...
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Gabe
NAME: Charles Gabriel CURRENT AGE: 7 HOME TOWN & STATE: Chattanooga, TN DIAGNOSIS DATE: August 4, 2018 PARENTS: Chip and Judy SIBLINGS: Gemma (GiGi) What it felt like when we learned our child has...
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Axl
NAME: Axl CURRENT AGE: 11 HOME TOWN & STATE: Roosdaal-België DIAGNOSIS DATE: April 2019 PARENTS: Gino and Leyla SIBLINGS: His sister, Naomi What it felt like when we learned our child has SLC6A1?...
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Arthur
NAME: Arthur Randall CURRENT AGE: 4 HOME TOWN & COUNTY: Tonbridge, Kent DIAGNOSIS DATE: May 2018 PARENTS: Lindsay Dilley and Daniel Randall SIBLINGS: His sister, Eden Randall What it felt like when...
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